This blog is one ladies dedicated attempt at raising awareness, support, fundraising and forming a social network around POTS (postural orthostatic tachycardia syndrome), EDS (Ehlers-Danlos syndrome) and all related syndromes of Dysautonomia within, but not restricted to Ireland. I am dedicated to supplying information and support to individuals who have been newly diagnosed with this disorder by sharing my own personal medical experiences with these conditions.
Our mascot is the Fainting Goat as we can faint a lot!! 🙂
This page is currently being run by 1 individual with hEDS, POTS, Gallbladder and gut dysmotility and a Seizure Disorder. They are not a medical professional, merely someone who wants to share their personal medical experiences to help others. If you have any medical matters you need advice with, please always go to your dedicated General Practitioner first 🙂 All help and support with this page is greatly appreciated, if anyone wants to help & get involved please get in touch by one of the methods below, Thank You.
With regards to this blog, please note that on the main page, newest posts appear first so be sure to scroll down to view older postings. Also any text that is blue in a given post is a link and may be clicked on for further information.
Symptoms of dysautonomia are numerous and vary widely from person to person. Since dysautonomia is a full-body condition, a large number of symptoms may be present that can greatly alter a person’s quality of life. Each patient with dysautonomia is different—some are affected only mildly while others are left completely bedridden and disabled.
The primary symptoms that present in patients with dysautonomia are:
- Excessive fatigue
- Rapid heart rate or slow heart rate
- Orthostatic hypotension, sometimes resulting in syncope (fainting)
- Very low blood pressure
- Pain in joints, bones and muscles
- Excessive thirst (polydipsia)
- Lightheadedness, dizziness or vertigo
Other symptoms frequently associated with dysautonomia include:
headaches, pallor, malaise, facial flushing, salt cravings, mydriasis, constipation, diarrhea, nausea, acid reflux, visual disturbances, orthostatic hypotension, numbness, nerve pain, trouble breathing, chest pains, in some cases loss of consciousness and seizures. To name but a few, Every individuals experience of these conditions may vary hugely.