About

This blog is one ladies dedicated attempt at raising awareness, support, fundraising and forming a social network around POTS (postural orthostatic tachycardia syndrome), EDS (Ehlers-Danlos syndrome) and all related syndromes of Dysautonomia within, but not restricted to Ireland. I am dedicated to supplying information and support to individuals who have been newly diagnosed with this disorder by sharing my own personal medical experiences with these conditions.

Our mascot is the Fainting Goat as we can faint a lot!! 🙂

This page is currently being run by 1 individual with EDS Type 3, POTS, Gallbladder and gut dysmotility and a Seizure Disorder. They are not a medical professional, merely someone who wants to share their personal medical experiences to help others. If you have any medical matters you need advice with, please always go to your dedicated General Practitioner first 🙂 All help and support with this page is greatly appreciated, if anyone wants to help & get involved please get in touch by one of the methods below, Thank You.

You can get in touch by emailing irishpotsies@gmail.com, Leaving a comment here on the blog or you may also find us on Facebook, Twitter and Youtube Please, Like and Subscribe.

With regards to this blog, please note that on the main page, newest posts appear first so be sure to scroll down to view older postings. Also any text that is blue in a given post is a link and may be clicked on for further information. 

Symptoms of dysautonomia are numerous and vary widely from person to person. Since dysautonomia is a full-body condition, a large number of symptoms may be present that can greatly alter a person’s quality of life. Each patient with dysautonomia is different—some are affected only mildly while others are left completely bedridden and disabled.

The primary symptoms that present in patients with dysautonomia are:

  • Excessive fatigue
  • Rapid heart rate or slow heart rate
  • Orthostatic hypotension, sometimes resulting in syncope (fainting)
  • Very low blood pressure
  • Pain in joints, bones and muscles
  • Excessive thirst (polydipsia)
  • Lightheadedness, dizziness or vertigo

Other symptoms frequently associated with dysautonomia include:

headaches, pallor, malaise, facial flushing, salt cravings, mydriasis, constipation, diarrhea, nausea, acid reflux, visual disturbances, orthostatic hypotension, numbness, nerve pain, trouble breathing, chest pains, in some cases loss of consciousness and seizures. To name but a few, Every individuals experience of these conditions may vary hugely.

10 thoughts on “About

  1. Wow, i have no idea what is wrong with me but a lot of these symptoms ring true, i have been being treated for hypothyroidism, which seems ok, and now currently for Vitamin D deficiency, ME/Chronic fatigue is likely to be the ultimate diagnosis but i am literally punching the air reading some of the stuff you describe with the relief of thinking this might not all be in my head (my symptoms are not as severe as yours, have never fainted but find standing, walking up slopes, and stairs very taxing, among other things). anyway just wanted to say well done for setting up the page and i hope you continue to manage your symptoms and be well, whether this turns out to be my issue or not. so frustrating that doctors seem to know so little in ways. Love the goat also!!!

    • YEAY!! I am glad it has helped and make you punch the air! 😀 I love the goat too, I think he needs a name!! :p :p I hope you find an answer to you ailments soon and things start to look up for you, thank you for popping by 🙂

  2. A very happy hello to an inspiring blogger! I just wanted to let you know that I’ve nominated you for the “Very Inspiring Blogger Award”. 🙂 Don’t feel obligated to go through the acceptance steps, I know how crazy life can get with busy schedules and such. I wanted to share your blog with my readers because I wanted them all to see how great you truly are. You have helped motivate me to keep my head up, and this is kinda my way of thanking you.

    If you’re interested in accepting the award, the details are here:
    http://teenswithpots.wordpress.com/2013/04/03/inspiring-blogger-award/

    Thank you for being you! Hope you’re doing well 🙂

    • HELLO!!! Thank you so much for nominating me and Thats so coool, I won an award! 😀 😀 Sorry about the delay, I hope to blog regularly again from now, I have gotten very lazy! Thank you so much, I will do a proper blog post to thank you, shortly 🙂 🙂

    • Hi Yvette, thank you ever so much for taking the time to read my rants, but if I can help or enlighten anyone with my own experiences, that makes me very happy. Welcome to the Potsie club, I hope it is not bothering you too much and thanks again for following 🙂 🙂

  3. I was recently diagnosed with POTS and some other medical diagnoses as well. Thanks for sharing your story! I wish you well with everything

    • Hi There Heather, I am sorry you got the diagnosis, but at least now you know what all your symptoms were, if there is anything we can help you with, please keep in touch here or on Facebook ❤ I may not write back right away as sometimes I have very bad health days myself, but I do always eventually check in! 🙂 I hope your symptoms are not too bad to you at the moment! Lette xxx

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