Printable Information & Links

Here is a page I will constantly try to add to, providing information, Research links and printable items to help educate others on your condition or that you can carry on your person to help raise awareness. If you have any suggestions of what to add, please leave a comment or email at: irishpotsies@gmail.com. Thank you 🙂

For now I will add web links but I am hoping to get official Irish Dysautonomia Leaflets done shortly 🙂

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WHAT IS DYSAUTONOMIA?
From Dysautonomia International

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GENERAL INFORMATION BROCHURE ON
ORTHOSTATIC INTOLERANCE AND ITS TREATMENT (POTS) – PDF
Chronic Fatigue Clinic Johns Hopkins Children’s Center – OCT 2011

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UNDERLYING CAUSES OF DYSAUTONOMIA
Dysautonomia International

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STARS: Syncope Trust And Reflex Anoxic Seizures
POTS INFO LEAFLET – PDF

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NDRF HANDBOOK FOR PATIENTS WITH DYSAUTONOMIAS
NDRF is pleased to make available the NDRF Handbook for Patients with Dysautonomias, written by Dr. David S. Goldstein, MD, PhD and Linda J. Smith.

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MEDHELP PERSONAL DYSAUTONOMIA TRACKER
“Track all the symptoms of dysautonomia including fatigue, lightheadedness, syncopes, respiratory problems, weakness, and dehydation. Tracking symptoms and treatments over time creates a longitudinal analysis of your progress, which can be easily shared with your doctor to make managing your health simple and easy.”

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USEFUL COMPRESSION STOCKING INFORMATION
From the: Living With Bob (Dysautonomia) Blog

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GI MANIFESTATIONS OF EHLERS DANLOS SYNDROME

Jeffrey A. Solomon, M.D., Lisa Abrams, M.D., and Gary R. Lichtenstein, M.D.

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EVALUATING THE CAUSE OF SYNCOPE

By Richard N. Fogoros, M.D.

Heart Disease Expert

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SUMMERY OF SYNCOPE AND NEURALLY MEDIATED SYNCOPE (NCS)
Dysautonomia International

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FUNCTIONAL DIGESTIVE SYMPTOMS AND QUALITY OF LIFE IN PATIENTS WITH EHLERS DANLOS SYNDROMES: RESULT OF A NATIONAL COHORT STUDY ON 134 PATIENTS.
Zeitoun JD¹, Lefèvre JH, de Parades V, Séjourné C, Sobhani I, Coffin B, Hamonet C.

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NEUROCARDIOGENIC SYNCOPE COEXISTING WITH POSTURAL ORTHOSTATIC TACHYCARDIA SYNDROME IN PATIENTS SUFFERING FROM ORTHOSTATIC INTOLERANCE: A COMBINED FORM OF AUTONOMIC DYSFUNCTION.
Kanjwal K¹, Sheikh M, Karabin B, Kanjwal Y, Grubb BP.

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EHLERS DANLOS SYNDROME AND POSTURAL TACHYCARDIA SYNDROME: A RELATIONSHIP STUDY.
Wallman D¹, Weinberg J², Hohler AD³.

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