Printable Information & Links

Here is a page I will constantly try to add to, providing information, Research links and printable items to help educate others on your condition or that you can carry on your person to help raise awareness. If you have any suggestions of what to add, please leave a comment or email at: irishpotsies@gmail.com. Thank you 🙂

For now I will add web links but I am hoping to get official Irish Dysautonomia Leaflets done shortly 🙂

_______________________________________

WHAT IS DYSAUTONOMIA?
From Dysautonomia International

_______________________________________

GENERAL INFORMATION BROCHURE ON
ORTHOSTATIC INTOLERANCE AND ITS TREATMENT (POTS) – PDF
Chronic Fatigue Clinic Johns Hopkins Children’s Center – OCT 2011

_______________________________________

UNDERLYING CAUSES OF DYSAUTONOMIA
Dysautonomia International

____________________________________________

STARS: Syncope Trust And Reflex Anoxic Seizures
POTS INFO LEAFLET – PDF

_________________________________________

 

NDRF HANDBOOK FOR PATIENTS WITH DYSAUTONOMIAS
NDRF is pleased to make available the NDRF Handbook for Patients with Dysautonomias, written by Dr. David S. Goldstein, MD, PhD and Linda J. Smith.

_________________________________________

 

MEDHELP PERSONAL DYSAUTONOMIA TRACKER
“Track all the symptoms of dysautonomia including fatigue, lightheadedness, syncopes, respiratory problems, weakness, and dehydation. Tracking symptoms and treatments over time creates a longitudinal analysis of your progress, which can be easily shared with your doctor to make managing your health simple and easy.”

__________________________________________

 

USEFUL COMPRESSION STOCKING INFORMATION
From the: Living With Bob (Dysautonomia) Blog

_____________________________________________

 

Jeffrey A. Solomon, M.D., Lisa Abrams, M.D., and Gary R. Lichtenstein, M.D.
________________________________________________

2 thoughts on “Printable Information & Links

    • Hi Tina, There are no dedicated clinics or specialists in Ireland for Pots but there are plenty of doctors treating it here, mainly cardiologists in various hospitals around the country, if you want to email me your location I can try and recommend the closest place to you. Thank you for dropping by – Lette 🙂

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s