Here is a page I will constantly try to add to, providing information, Research links and printable items to help educate others on your condition or that you can carry on your person to help raise awareness. If you have any suggestions of what to add, please leave a comment or email at: firstname.lastname@example.org. Thank you 🙂
For now I will add web links but I am hoping to get official Irish Dysautonomia Leaflets done shortly 🙂
WHAT IS DYSAUTONOMIA?
From Dysautonomia International
GENERAL INFORMATION BROCHURE ON
ORTHOSTATIC INTOLERANCE AND ITS TREATMENT (POTS) – PDF
Chronic Fatigue Clinic Johns Hopkins Children’s Center – OCT 2011
UNDERLYING CAUSES OF DYSAUTONOMIA
STARS: Syncope Trust And Reflex Anoxic Seizures
POTS INFO LEAFLET – PDF
NDRF HANDBOOK FOR PATIENTS WITH DYSAUTONOMIAS
NDRF is pleased to make available the NDRF Handbook for Patients with Dysautonomias, written by Dr. David S. Goldstein, MD, PhD and Linda J. Smith.
MEDHELP PERSONAL DYSAUTONOMIA TRACKER
“Track all the symptoms of dysautonomia including fatigue, lightheadedness, syncopes, respiratory problems, weakness, and dehydation. Tracking symptoms and treatments over time creates a longitudinal analysis of your progress, which can be easily shared with your doctor to make managing your health simple and easy.”
USEFUL COMPRESSION STOCKING INFORMATION
From the: Living With Bob (Dysautonomia) Blog
FUNCTIONAL DIGESTIVE SYMPTOMS AND QUALITY OF LIFE IN PATIENTS WITH EHLERS DANLOS SYNDROMES: RESULT OF A NATIONAL COHORT STUDY ON 134 PATIENTS.
Zeitoun JD1, Lefèvre JH, de Parades V, Séjourné C, Sobhani I, Coffin B, Hamonet C.
NEUROCARDIOGENIC SYNCOPE COEXISTING WITH POSTURAL ORTHOSTATIC TACHYCARDIA SYNDROME IN PATIENTS SUFFERING FROM ORTHOSTATIC INTOLERANCE: A COMBINED FORM OF AUTONOMIC DYSFUNCTION.
Kanjwal K1, Sheikh M, Karabin B, Kanjwal Y, Grubb BP.
EHLERS DANLOS SYNDROME AND POSTURAL TACHYCARDIA SYNDROME: A RELATIONSHIP STUDY.
Wallman D1, Weinberg J2, Hohler AD3.
Is there a clinic in irland that helps with pots
Hi Tina, There are no dedicated clinics or specialists in Ireland for Pots but there are plenty of doctors treating it here, mainly cardiologists in various hospitals around the country, if you want to email me your location I can try and recommend the closest place to you. Thank you for dropping by – Lette 🙂
Hi I am looking for a specialist to diagnose pots can you help in in co Clare ireland
Hi Erica, I would highly recommend Prof. Declan Lyons who can be seen publicly at the University Hospital Limerick and he can be seen privately in his rooms too, all his info is on Google 🙂