#REDS4VEDS Vascular EDS Awareness

 

It’s that time of year again where we all try to raise awareness of Vascular EDS, the scariest of all the EDS’s. It is in conjunction with Annabell’s Challenge and originally organised by @TheZebraMom and EDS Awareness Ireland. This campaign has gone global now (Well done to the creators!) so lets keep it going!

1: Wear Red
2: Snap a Creative Selfie
3: Be sure to use #REDS4VEDS
4: Share on all your social media accounts
5: Tag or Share with 3 others so that they will do it too and we can carry on the love!

Thanks Folks

Happy #REDS4VEDS Day! 🙂

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Stronger Together – The International Future of EDS

Ehlers-Danlos Society Youtube Video Published on Feb 1, 2016

Lara Bloom Eds introduces the new The Ehlers-Danlos Society previously (EDNF.org) and talks about the upcoming New York EDS Symposium, the first meeting of medical and patient experts in this area for over 20 years! Hopefully it will bring international change for the better for those of us with EDS. Thanks for all your hard work Lara and the Ehlers Danlos Society.