Ehlers-Danlos Society Youtube Video Published on Feb 1, 2016
Lara Bloom Eds introduces the new The Ehlers-Danlos Society previously (EDNF.org) and talks about the upcoming New York EDS Symposium, the first meeting of medical and patient experts in this area for over 20 years! Hopefully it will bring international change for the better for those of us with EDS. Thanks for all your hard work Lara and the Ehlers Danlos Society.
This is only a seed of a thought at the minute, but I was wondering…
If I were to do maybe a monthly live Youtube chat, where I answer all your questions after researching proper answers and I will provide links and references for further reading etc. Or perhaps have guests on in relation to Dysautonomia and EDS etc. if I can find them, would you watch it?
How it works is,
I provide a date and time that suits the masses using a blog post or Facebook Event Page.
You post questions into the post for me (Or possible guest) to research to give you the best possible sourced answer I can. (I won’t accept made up or woo-woo answers, my peeps only get the best!)
I research all the answers to the questions and on the live chat date I will present them while possibly sharing my desktop screen.
You get your sourced answers and I learn also along the way, not to mention you might get to watch my ugly mug on the video too! :p
There is a live typed chat that people can take part in during the live feed and I will do my best to involve and interact with everyone.
That’s the idea… Do you think you would watch and take part in something like that? I would like to be sure I would have viewers before I put the effort in! 🙂
I was thinking about sprucing up this little blog and related social media for 2015, Perhaps a new look, guest posts, any suggestions welcome of what you would like to see featured, please let me know here or at : firstname.lastname@example.org
As always, if anyone wants to write a post, draw a picture, do a presentation, a video, whatever you please on any aspect of Dysautonomia and it’s related issues, please just get in touch I would be delighted to post it here on the blog 🙂