Ehlers-Danlos Society Youtube Video Published on Feb 1, 2016
Lara Bloom Eds introduces the new The Ehlers-Danlos Society previously (EDNF.org) and talks about the upcoming New York EDS Symposium, the first meeting of medical and patient experts in this area for over 20 years! Hopefully it will bring international change for the better for those of us with EDS. Thanks for all your hard work Lara and the Ehlers Danlos Society.
This is only a seed of a thought at the minute, but I was wondering…
If I were to do maybe a monthly live Youtube chat, where I answer all your questions after researching proper answers and I will provide links and references for further reading etc. Or perhaps have guests on in relation to Dysautonomia and EDS etc. if I can find them, would you watch it?
How it works is,
I provide a date and time that suits the masses using a blog post or Facebook Event Page.
You post questions into the post for me (Or possible guest) to research to give you the best possible sourced answer I can. (I won’t accept made up or woo-woo answers, my peeps only get the best!)
I research all the answers to the questions and on the live chat date I will present them while possibly sharing my desktop screen.
You get your sourced answers and I learn also along the way, not to mention you might get to watch my ugly mug on the video too! :p
There is a live typed chat that people can take part in during the live feed and I will do my best to involve and interact with everyone.
That’s the idea… Do you think you would watch and take part in something like that? I would like to be sure I would have viewers before I put the effort in! 🙂
I was thinking about sprucing up this little blog and related social media for 2015, Perhaps a new look, guest posts, any suggestions welcome of what you would like to see featured, please let me know here or at : firstname.lastname@example.org
As always, if anyone wants to write a post, draw a picture, do a presentation, a video, whatever you please on any aspect of Dysautonomia and it’s related issues, please just get in touch I would be delighted to post it here on the blog 🙂
Finally feeling good after a rough Christmas, here is a video I did last week when I finally got out of the house for a walk through The Clare Glens near our home, it was wonderful to get out for a change and I have managed more days out and some of them even included work days, so YEAY!!! Lets hope this continues, but as we all know with Dysautonomia, you take each day as it comes so I am just enjoying this while I can 🙂 Please tell me how you guys are doing and if there are any questions, please just ask here or over on the other Irish Dysautonomia Awareness links on Facebook, Twitter and Youtube!
A Fainting Goat Merchandise fund raising shop will be up and running very soon too, here is a quick pic of some of what will be on offer, there will be Womens and Mens apparel available in a wide variety of colours and sizes with high quality printing on both front and back as well as bags, hats and teddies! All profits on all items will go straight to fundraising and donated to a charitable cause related to Dysautonomia.
This turned out to be quite the giggle, There is a blooper at the start, I ramble all the way through and its like someone put batteries up my bum and set me on repeat! :p But I tried! LOL!
The sound is a little all over the place and I could only upload the video in standard resolution as the HD file was huge, so ill try and get that up at a later stage.
Thanks muchly to my Hubby Keith for throwing the video together and don’t worry, there isnt someone being tortured outside the studio, there is a guy playing Table Tennis and he wasnt having a good game!! :p