Hey folks, its been aaaaages, I know, but life and illness got in the way! :p
I will be doing a video update this week to fill you in over what has happened since I last uploaded a video in May, Things kinda went downhill a little after that!! :p
Please bear with me and I will update shortly, how are you folks doing anyhow? 🙂
– Lette 🙂
Posted in Uncategorized |
Tagged Danlos, Dysautonomia, EDS, Ehlers, Fainting, Goat, Hyper, Illness, Ireland, Joint, Mobility, Orthostatic, Postural, POTS, Rare, Syndrome, Tac, Tachycardia, Unknown, Update |
Hi all and welcome to the new blog where we hope to create a social network of individuals from Ireland and around the world who suffer from any type of Dysautonomia.
Here we hope to come together as one and share our experiences, treatments, tips and support to help each other out.
All welcome and if you would like to be involved in this blog, please email us at: email@example.com
You may also find us on
Facebook and Twitter, check out the links to follow us and keep up to date with our information and events.
There are lots of informative links and blogs added to the sidebar for your information and if you would like to be added to the links on this page just let us know!
We have also set up a
youtube channel and are looking for anyone interested in documenting their experiences through video.
Welcome once again and we welcome any help and information, just drop us an email if you would like to get involved in any aspect of Irish Dysautonomia Awareness.
Please help us spread the awareness as there is such little information out there, should it take off we are hoping to turn it into a recognised charity, but can only do that with all of your help.