Finalist of The Littlewoods Ireland Blog Awards 2016

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I am delighted and so proud to announce that I just found out that The Irish Dysautonomia Awareness Blog here has made it as a Finalist in The Littlewoods Ireland Blog Awards 2016 under the Health & Wellbeing Category! 😀

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I never imagined we would even make it to the Shortlist when we did, but to make it as a Finalist? I can’t tell you how excited I am about this, and I have YOU, yes, all of you reading this, to Thank for making it this far.

This Blog is all about raising awareness of these under diagnosed conditions, and having people check out the blog for judging means that even just a few fresh eyes will see the blog and may learn something new that day about a condition they may have never heard of before, if that alone is all that is achieved from this then I am absolutely thrilled. I can’t believe we have made it this far, I am so happy! 😀

Thank you all!! ❤

From here, this Finalist List will now be judged by a panel of Pro Judges (Those who know the industry well) and no open voting this time. That final list then will be the ones that go through to the awards to possibly win.

I am utterly thrilled we have come this far and even if we don’t go any further, I couldn’t be happier with the outcome so far. 🙂

Also, I would like to take this opportunity to extend a massive congrats to Catherine Colbert of The Cripple Baby Blog, she also made it as a finalist and Blogs in the same category about Dysautonomia and related issues too! Nice one Lady! 😀

And of course, congrats to everyone who has made it this far in the Awards!

Once more, I can’t thank you all enough for your votes and support, fingers crossed this may go further, but if not, I think we did good! 😉

Cheers, I’ll keep you all updated as I find out more, Thank you so much for reading,

Lette (Fainting Goat)

Shortlisted? – Was Not Expecting That!

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WOW!! So in the last week a lot has happened.

I was admitted to hospital on Wednesday the 10th after a few weeks in bed, nursing a savage pain in the right side of my Abdominal area. I was released yesterday after a really productive week in! I will do a separate blog post highlighting what happened, but this post is about something most unexpected to me! 😀

I am delighted to announce that on Tuesday the 16th of August, I got an email to say that Irish Dysautonomia Awareness, had made it through to the Shortlist of the Littlewoods Ireland Blog Awards 2016! 😀 YEAY!

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Public Vote:

So now the voting begins and this is where I beg for your votes! –  Well it begun on the 17th and runs until the 23rd but I have missed out on a few days because of the hospital stay.

The public vote opens at the Shortlist stage, and accounts for 20% of your mark (80% comes from peer judging).

If you would be ever so kind as to click on the image below and hit the Vote Button, just be aware It will open in a new window or tab. I would be eternally grateful! 😀 It will ask to verify your vote with giving an email or signing in with Facebook, this only takes a few seconds, so thank you so much in advance.

Please Click Through Here To Vote

Please Click Through Here To Vote

Remember, this is not about winning, and completely without trying to sound humble I don’t expect to get anywhere further, but to raise awareness of this condition through opening this blog up to even just a few more people, would be fantastic for all of us. Thank you!

Lette – Fainting Goat =)

Made The Longlist of The Irish Blog Awards 2016!

 

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WOO!! So not only did the Blog make the long list finalists for Best Health and Lifestyle Blog in The Irish Blog Awards 2016, but also one of my blog posts, ‘The Good, The Bad and the Emergency‘, made it onto the the long list for Best Blog Post!!

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I am delighted and I have you all to thank for adding your entries for the blog! I cannot tell you how much I appreciate it 🙂 From here on, as far as I know, The blogs will now be judged by a panel and then those who make it onto the shortlist may need to get votes for the remainder of the judging so if I ever even make it that far, I may be back to ask for some votes! :p

For now, Thank You all once again and I will keep you posted on how everything goes 🙂 ❤

Lette (Fainting Goat)

The Blog Awards Ireland 2016 – Nominations Now Open

Hi all,

I am delighted to say that Irish Dysautonomia Awareness has been entered into this years “Health & Well Being” – Personal Blog – Category in the blog awards nominations and hopefully will make the long list at least, that’s where it got last year so to make that again would be really nice! 🙂

If YOU would (Please) like to Nominate this blog Please click HERE (Give it a minute to load, it can be slow!) or click the image below and follow the instructions. I would greatly appreciate your input, THANK YOU! You need to register with the site but you can do so quickly and easily  by signing in with your Facebook and you can control what information you give them.

Please enter The Title of the blog: Irish Dysautonomia Awareness,
Also pop in the URL of this Blog which is: https://irishdysautonomia.wordpress.com
also please be sure to enter it into the ‘Health & Well Being’ – Personal Blog – Category.
Thank you ever so much!

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Please click here and enter the info to Nominate this blog! – THANK YOU!

This year there is also an entry to nominate your favorite Blog Post from the blog here. In the last number of months the post that has raised most interest seems to be this one:
‘The Good, The Bad & The Emergency – Part 1’

I would also greatly appreciate if you have the time, to maybe nominate that blog post Please and thank you most kindly! as far as I can figure, there’s no harm in trying! 🙂

It is the same process as the first, please click Here:
Hit ‘Nominate a Blog’ – Enter the ‘Blog Post’ Title as: The Good, The Bad & The Emergency – Part 1

The Blog Post link is : https://irishdysautonomia.wordpress.com/2016/04/05/the-good-the-bad-and-the-emergency-part-1/

The Category is ‘Best Blog Post’ – Personal Blog

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Please Click Here and Enter ‘Blog Post’ Details (As I have laid out above) for Nomination – Thank You

Thank you so very much for you time in doing this each and every year, I may be back to you for more support if we make it to the ‘public vote’ part but even if it doesn’t get anywhere, a few more people will view the blog as a result of just entering and further our much needed awareness, even just a teeny bit.

Thank you once again,

Lette – Fainting Goat!

Blog Awards Ireland Long List Nominee!

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I am delighted to announce this humble little bloggie made the Long List in Best Health and Wellbeing Blog category in the Blog Awards Ireland 2015!!

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This is only a start, The long-list will be further reduced to a short-list, which will be announced on the 2nd of September 2015. The shortlist will then be opened up to a public vote which will begin on  7th September 2015 and stay open for 2 weeks. 

So if we make the Shortlist, which I think is a bit of a longshot, I will be onto you all again for a few possible votes! 🙂

This is only a small step but I am delighted because any cause for awareness of this condition is so welcome and needed.

Thank you to everyone who put this blog forward, I greatly appreciate it ❤ ❤ ❤

Stay posted to see if we actually get anywhere! 😉

Fainting Goat (Lette)

Dysautonomia Diagnosis Update – 2014

As May is EDS Awareness month and I was asked to do an update on my Diagnosis story to share with you all to try to raise a little awareness of the condition, here I am once again, another year later, 2014 already and lots has indeed happened in the last year that I can add onto the overall diagnosis story.

If you would like to read 2013’s update and the full background of my diagnosis, you may find that here.

So I will give you a brief background to get going, then the updates from the last year or so.

In April 2011, after nearly a month in hospital and numerous medical tests,  a Tilt Table Test confirmed a diagnosed of Postural Orthostatic Tachycardia Syndrome and Neurocardiogenic Syncope also called Vasovagal Response.

In October 2012 I was diagnosed by a Reumatologist in Cork that I had Ehlers Danlos Syndrome Type 3 Hypermobility Type, which in turn would be the organic cause of the Pots.

My symptoms and signs at the time, and still do consist of Syncope (Fainting) sometimes with no breathing and with seizure like activity, It has happened countless times now, and some of the serious fainting without breathing has caused short term paralysis in my legs and lasting neuropathy. I have Very Low Blood Pressure, Dizziness, Severe Nausea and tummy/gut trouble and vomiting, Excessive fatigue, Costochondritis, Easy Bruising, Blue Sclera, Severe pains in my Joints mainly in the lower limbs, back and right shoulder.

I take 18 tablets a day, 8 different kinds spread out over 3 times a day.

Last year saw a big improvement in my health that I was just feeling well and fit enough at the start of the summer to think about applying for jobs once again, then in April 2013 I had an interview, they called me for a second interview and I landed the job. It was perfect. I worked from home, on a set schedule where I had to sign in online at a certain time and be available to give tech support to customers calling in. All tech was provided, I won’t name the company but needless to say, I adored the job. I worked hard, I was actually doing really well and made lots of friends.

Everything was going amazing until my Pots started acting up, sometimes I had to put people on hold as I hacked into a bucket! The pain in my pelvis, hips and lower limbs became so much that crutches no longer supported me well enough.

In August I was in a wheelchair, In September I was admitted to hospital for 11 days for investigations and pain management. The specialist advised that I didn’t return to work.

I was in a little shock I think, the job was just working out, then out of nowhere…
We had to take time to let it all sink in, it did, we had our ‘Why Me?‘ moment, yes, I just did that! 😀 and then I realised I had to sort everything out, like work, social welfare, adaptations, treatment like Physio & Hydro Therapy, Occupational Therapist, Pain Management, Learning to live needing a wheelchair, for now at least (I live in hope, but I’m not delusional!!) 😉 :p

There was just one morning after I got home from the hospital and had let it sink in where, I just said, screw this, it’s not going to do it’s self! Keith and I got to making lots of phonecalls and got an Occupational Therapist and Physiotherapist on the go, I rang to end work and get all that sorted and only started going about the process of applying for certain social welfare and home needs which to my surprise had been cut substantially from what had been expected. Only in recent weeks have I been told that I will not hear anything back from the Housing Adaptation Grants (if at all) until ‘at least’ 2015!

My Occupational Therapist is amazing, so utterly helpful and always tries to do what she can, My physio is also very helpful but unfortunately I only get to see him roughly once or twice a month. I had started Hydrotherapy, found it very helpful but then had a syncope in the pool and that was the end of that! So for now, I am not getting much in the way of physical progression with my legs, though I do hope to try and get referred to Harolds Cross in Dublin, where they do intensive, in house, Occupational, Physio and Hydro therapy, while you are accommodated at the hospital for careful monitoring, but we will wait and see!

What a lot of people don’t realise is that, there are NO Dysautonomia specialists anywhere  in Ireland, some have a bit of knowledge around Pots but not EDS and NONE have been trained specifically to treat these conditions, so treatment is more of a mix of everything they think you need, a stab in the dark, and then there is no communication between the different doctors that are treating you. The closest specialist Autonomic center and Qualified Specialists in the field of Dysautonomia are in London and the HSE simply doesn’t want to know about sending you over to get the treatment you need. They are also refusing the Travel Abroad Scheme to the majority of people who apply for it. To go over privately is simply not an option for the majority of us as we simply cant afford it.

Since being diagnosed with Pots originally in April 2011 and EDS in October 2012, I still faint, I also have syncopies where I can have seizure like activity and I can stop breathing with all faints, Some of which have left me with paralysis and long term muscle neuropathy. I constantly have pain and often severe gut and tummy trouble with the EDS and it’s complications. I am now in a wheelchair a year come August and I have had many ambulance rides, rushing me into emergency and I still regularly have many hospital stays, visits and appointments.

but you know what? I count myself lucky! Things could always be far worse and I am very lucky and endlessly thankful for certain people in my life, Namely, my husband, I would be truly lost without him ❤

My family and friends deserve saint and knighthoods for their patience with me as I can never commit to anything, but such things are out of everyones control.

For now I keep myself busy and roll with whatever is thrown at me!

Thank you for reading my story 🙂

 

 

 

 

Nominated for The Irish Blog Awards 2013

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WOOO!!!! We made the long list in Wellness Blog Category in the Irish Blog Awards 2013!! 😀 YEAY!!! That is amazing to raise awareness of and the lack of support for this condition 🙂

The long list means that we have been nominated but we will need your votes and support going forward (when the voting reopens) to try and make the short list, as only those blogs on the short list are actually considered for an award.

Any recognition and awareness is greatly appreciated and I feel the Irish blog awards are amazing on gaining growing recognition for new blogs. This is also a great platform and opportunity to raise awareness of this condition and the lack of help in this country for it.

So thank you all so very HUGE much for the votes and nominations already, they are greatly appreciated and heres hoping to make the shortlist and gain more recognition for support of this illness in Ireland 🙂 🙂