Hi everyone, (all maybe 2 of you who read this humble bloggie! 😉 ) I hope you are ‘both’ keeping very well? :p
Thursday, this week, was the day to get my Sacroiliac (lower back/top of pelvis near the hips) and Occipital (Back of the skull near the very top of your neck) Nerve Blocks in Croom Orthopedic Hospital with the Good and Great Prof. Pain Specialist (as I shall refer to him!)
I really like this guy, he is friendly, thorough, very helpful and LOVES History! 😀 When he speaks with you, if he gets a thread of a piece of history he may know about in the conversation, he will pull that thread and see where it goes! He likes to talk and looks like the epitome of a Pain Specialist, Tall, Slim, White Lab Coat over a nice suit and tie or sometimes he may be in blue scrubs, and there he stands with an ultrasound probe in one hand and an intimidating looking injection in the other and usually a large grin on his face! :p
Anyway! I had found the last 3 weeks or so very bad with pain, especially at the base of my skull and the top of my neck and shoulders and as I have been given admission in Harolds Cross from the 8th of February for at least one week and perhaps more, so I needed these before going, gladly, I had the appointment already given to me since my last admission in October where I had gotten my first Occipital Nerve Blocks.
It was a really long wait, my appointment was at 12 and I didn’t get in for the injections until after 2pm! He asked me how I was doing, reviewed my pain and pain meds and went in for the kill!! These injections are sore but not impossibly so. They have anesthetic in them so there is a numbing effect which kicks in after a couple of minutes, but the injection itself will make you squirm, just a little.
I got the injections under ultrasound and while looking at my neck he said he wanted to send me for an xray and following that an MRI. I will be called for those soon but he said he wanted to check for possible instability or anything that might give away what might be going on in my neck. He said it sounds like instability of the neck to him but it cant be seen or confirmed without proper scans and tests.
He explained that the clarity and contrast between a regular xray and an MRI wouldn’t have much in the difference but that it would be a proper start to the investigation of what is going on in my neck. Depending on what shows up or what doesn’t show up on these xrays, my next trip to London may involve an upright MRI to investigate deeper for instability or other complications.
While behind me giving the injections in my sacroiliac joints he grabbed my ponytail and said,
“Perhaps getting this hair cut may help ease your discomfort? especially before starting in Harolds Cross”
When I asked if he really thought it would help he said he didn’t see why it wouldn’t at least help ease the pain, anything to cut any bit of weight off the neck is a good thing and that having to deal with hydrotherapy, pools and showers on a daily basis while in Harolds cross, would probably add more stress and strain to the neck so he thought it would be best to get it cut sooner rather than later! …so, I will! 😮
I had been planning for near months to get the mop cut anyway, its been over a year and its in dire need of a nice new doo!
My plan then for this week is to get ‘mah hurr dunn’, Relax and recover from the nerve blocks before starting in Harolds Cross. They take anywhere from a few days to a few weeks to kick in properly to kill the pain, so there is a small improvement at the moment, nothing spectacular just yet but I am hoping as the next couple of weeks go on, the pain will ease even more (I hope!) I have had them done many times before and sometimes they have worked great for a few weeks and then sometimes, I felt they didn’t do much at all. I will just wait and see how these go! 🙂 I have a Pots outpatients Clinic Monday Morning at 10am and have to meet my GP during the week to sort out my scripts to have ready for going up next week.
I have nothing major planned until I head to Dublin on the 8th of Feb, when I start in Harolds Cross, but I do want to update you while I am there also. I need to sort my WordPress app out on my phone, if not I will have to just take notes and do a full fill in when I am home!
Either way, I hope to find out if it is worth it for people like us.
I reaaaaaally hope it is! It would be lovely to have a place that provides safe respite for people with rare musculoskeletal conditions. I will keep you posted!
Until then, please keep up to date over on the Facebook Page, Twitter and of course The Private Support Group if you would like to share your stories, experiences or questions with like minded and like bodied people like ourselves in a private and safe environment, please feel free to join us, just send a request and ill be sure to let you in 🙂
Waiting to see a pain specialist myself, so I’m happy to read this -Sounds promising! And glad you got a sound one, always makes such a difference 🙂
What type of solution was used for the nerve blocks? I’ve had 3 different types and the only type that provides more than a few days’ relief is botox. I have an extremely unstable neck and get intense chronic migraines. Unfortunately in the U.S. botox costs a pretty penny (unaffordable in most cases) but it’s not like I want the back of my head, neck and scalp to look pretty. 😉 The cosmetic industry drives the price up based on their 20-30 units whereas we need 100-200 units. But honestly botox makes me feel like I have my life back and the other things I can manage. The migraines are like ceasing the controls of everything… can’t even think or use the eyes. Coincidentally it’s injected to the thoracic outlet area and that’s where I have extra ribs at C7 as well. The ribs and my atlas/c1 are fighting over the muscles. Then my shoulder falls out of the socket and pulls my spine and everything with it like a falling house of cards.
Good luck to you! I’m glad to see you have lots of support and glad to see whatever they put in the nerve blocks helped you.