Hehehe! As you can see we are stuck on a funny number of likes over on the Facebook Page! If you have a moment, please click in and give us a like, Thank you! 🙂
While you are at it, check us out at these following links, I would love to hear from you 🙂
IMPORTANT ANNOUNCEMENT FOLKS!!
To all Irish Dysautonomia Awareness members and followers.
I am delighted to announce that Irish Dysautonomia Awareness has been selected to trial an innovative personal health organiser – the MediStori FOR FREE to our members.
Creative Founder of the MediStori, Olive O’Connor is a mum of three daughters whom have complex chronic illnesses, and she shares her own journey and her discovery on how to make her life of tracking appointments, managing medications, getting diagnosed & communicating easier by keeping a specialised diary. Olive is now looking for patient/ parent feedback on this clever patient led initiative, with the aim for it to be rolled out in our health services nationally in 2016.
If you would like this once-off opportunity to be a part of the design of this care package, PLEASE GO TO: http://www.medistori.com/join-team/ and input your details . The MediStori is completely FREE to our members and followers so ensure you add our name (Irish Dysautonomia Awareness) in the “Where You Heard of Us” section and DO NOT go to PayPal links.
For this, all Olive asks for in return is to fill out two questionnaires so Olive can make the MediStori the best it can be. For more information you can call the MediStori Helpline on: 094 90 10114 or email: trial@medistori.com.
I have already received one of these packs and have to say it is an excellent idea and way of keeping track of everything medical for anyone with chronic illnesses. I hope to do a full review of it here on the blog very soon 🙂
Thanks again to Olive O’Connor from MediStori for this opportunity 🙂
If you remember a few posts ago, I had mentioned I was looking for people to contribute to the blog by submitting some articles or anything they would like to share. That offer still stands to all of you but I am delighted to announce that on Friday, I was approached and offered an interview with Dr. Mustafa Ahmed, the interventional cardiologist who created The POTS Center.
Mustafa Ahmed MD, is a Cardiologist and Scientist, internationally recognized in areas including valvular and surgical heart disease and POTS. He was born in Nottingham, England, he went to medical school at the Victoria University of Manchester. After graduation he took postgraduate positions at the prestigious Manchester Royal Infirmary, Manchester, then the Queens Medical center, Nottingham. Dr Ahmed then moved to UAB where he was the first ever person selected for the highly competitive Physician Scientist Training Program with specialization in cardiology and interventional cardiology. – myheart.net
We discussed the possibilities of how best to approach this and I thought, why not open the questions up to all of you lot, the community reading this? Then everyone can contribute and have their questions answered by Dr. Ahmed.
If you have a POTS related question that you would like answered please get it to me before Monday the 23rd of March. Feel free to either email me on irishpotsies@gmail.com or leave a comment here or on the other social networks. Facebook, the private Facebook Support Group & Twitter
I am really looking forward to passing all our questions to Dr Ahmed and I thank him for this opportunity to raise more awareness 🙂
Get your questions into me, cant wait to see what you come up with!
Lette 🙂
Irish Dysautonomia Awareness 