If you would like to submit your story, an image or anything you like to raise awareness for Saturday’s Rare Disease Day please email irishpotsies@gmail.com and I will run it on the Facebook page and blog, it can be anonymous if you prefer.
I left all of this a bit late but will attempt to do a blog update highlighting the shortfalls in the Irish Health System relating to the treatment of rare diseases and I hope to do a video.
I have been feeling pretty rough lately so I will do my best 😉
Irish Dysautonomia Awareness 