Hey all, I have decided to bite the bullet and go for treatment abroad in London, there is just no way I am getting all the care I need here in Ireland. If you can spare anything, even just a few minutes to share this link, I would greatly appreciate it, Please click on the image below to donate or find out more. Thank you ❤
At the age of 28, Lette was diagnosed with POTS and NCS (with Respiratory Arrest). In the past 3 years she was also diagnosed with EDS, and a Seizure Disorder.
In 2013 Lette’s hips failed. She now uses a wheelchair. In May 2014 after a syncope and respiratory arrest, where she needed rescue-breathing for 17 minutes, she started to experience recurring seizures. The health system’s slow pace means Lette must wait months to begin investigations to rule out a brain adenoma.
We decided to ask for your help because, over the past 3 years Lette’s health has deteriorated. These conditions are very rare, and treatment is complicated by a lack of understanding by healthcare professionals. Specialist treatment is simply unavailable in Ireland.
Your assistance will allow Lette to travel for initial, and follow-up sessions with 3 specialist consultants in London. It will provide for diagnostic and clinical examinations, treatments, scans, and associated expenses to discover a course of treatment for her condition, allow her to promptly rule out any high-risk complications, and most importantly to hopefully improve her quality of life.
We deeply appreciate any contribution that you can make, or awareness you can spread, to help Lette get access to the treatment that she needs.
Thank you.
Irish Dysautonomia Awareness 